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Hiring a Doctor

June 17, 2009

Yes, you read that right.  I hire doctors.  You want to ask me how it’s going in the land of “we need to have your medical records before you can meet the doctor”?  huh???? or how about “It is our policy that you MUST have a mammogram at our facility before the doctor will see you”  Oh really great… Let’s irradiate the most radiation sensitive tissues I have, that I’m working as hard as I can to heal,  just so I can get to meet a doctor that I may not even like.  I want to meet the doctor to see if we have a good fit and the doctor will work with me, THEN you can have my medical records and we’ll talk about mammogram, and only if absolutely necessary.  I’m not going to check my brain at the door and be run through the patient mill.  Heck, they don’t even have to look up to notice that a living person is in front of them.  I have encountered more dis-empowering language in the last few days than I can stand. And then, when I say anything about alternative care and prevention I get the patronizing tone of voice.

Meantime, I have a port that needs to be flushed and I can’t get it done here.  Unless I do it myself.  I just need to get my hands on a needle and saline and heparin flushes.  I’m not without options to get that done.  I am so annoyed.  Of all the issues involved in moving to Ohio, getting medical care that fits me is the very biggest.

I’m trying (and failing at the moment) to work around my anger, despair, and fear.

Time to sit and try to meditate and pray and visualize the outcome I want…I have some ideas…I see compassion and support and all the resources that I need to sustain my spiritual, emotional and physical life.  I just know that there is a way around these roadblocks…There are a couple of people here who I might ask for recommendations…There IS an Oncologist somewhere in northeast Ohio, or within two hours drive,  who would be a good fit for me.

Oh help

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13 Comments leave one →
  1. Mary Hillstrom permalink
    June 17, 2009 11:07 pm

    Oh Liz,
    I’m so sorry you are encountering such disrespectful medical practices when you so urgently need to hire a good doctor. Anger sounds like a reasonable response. And despair and fear, too. I hope that you can feel the support of all of us out here. We are standing in support around you when you must hold your ground during these encounters. We are there with you, in spirit if not in body. Let that image of all of us standing with you and backing you up help you to remember that you are right to demand respect and listening and to be seen as a full person, a fellow human being. We’ve got your back. We know your strength and we feel your fear and sorrow. We are here to support you, pray with you, laugh with you, and cry with you.
    Love, love, love!
    Mary

    • June 18, 2009 6:59 pm

      Mary, Your support and encouragement means so much to me. I love your choice of words…always so important as words can carry so much weight, and heal or hurt as applied. Unhappily, the language of the mainstream medical profession is often thoughtless and hurtful…
      You, and others, who I know love me to bits, standing behind me, have been a soft place to land today. I am blessed, and I love you.

  2. Bob permalink
    June 18, 2009 3:01 pm

    I am so sorry to hear of this frustrating red tape. I’m getting in touch with a college classmate who is an oncologist (leukemia specialist, but I’m sure knows the field for breast cancer). He is head of Harvard’s Health Service and I figure he must know some names in Pittsburgh and Cleveland who might be willing or able to bypass all that stuff at leasr for an initial meeting. Would you prefer a woman? I won’t give your name to anyone, but will pass along what I hear.

    • June 18, 2009 7:10 pm

      Bob, Oh thank you, thank you, thank you! You are the best! I’m glad you had a short chat with Tim this afternoon. Sorry, I had been asleep and could not come to the phone myself.
      I don’t care if the doctor is a man or a woman…it is the caring attitude, willingness to listen to me, and help with monitoring my progress that I most care about. All without patronizing and trying to scare me. A tall order, I know. I know some exist as I had a good one in Virginia. I’m praying for a good referral.

  3. angela permalink
    June 20, 2009 10:53 pm

    sorry to hear you are going through this. Here’s an idea, awhile back I posted names of 3 holistic doctors in the area, why not call them and have them give you a referral to an MD who is open to options. I know many of these places work with medical doctors.

    Just a thought.

    Angela

  4. June 21, 2009 6:31 am

    Great idea! I remember, though don’t recall how long ago…do you ? it will shorten the searching time.

    • angela permalink
      June 25, 2009 11:01 pm

      i hear a lot about these 3 doctors…..

      Dr. karin Cseak, DO —-she does holistic medicine—-
      556 Portage Trail Extension West
      Cuyahoga Falls, OH 44223
      (330) 923-3060

      Dr. Sherri Tenpenny ——-she does holistic medicine——
      http://osteomed2.com/tenpenny.aspx
      Phone: 440.239.3438
      Address: 7271 Engle Road #115
      Middleburg Heights, OH 44130-8404

      Preventative medicine group
      http://www.prevmedgroup.com/doctors.php
      —2 were Md’s at Clev. Clinic for 20 years left to do holistic medicine—
      Suite 370
      24700 Center Ridge Rd.
      CLEVELAND, OH 44145
      440-835-0104

  5. June 27, 2009 7:07 am

    Angela! thanks! I’ve just read your comment…life has been a little too busy. have not been home much. I will call these guys next week! I especially appreciate the links 🙂

  6. sheilamiller31 permalink
    June 28, 2009 10:54 am

    Hi Liz
    I am sorry to hear about your troubles finding the right doc but I commend you for sticking it out and really looking for someone who is a good fit and not submitting to their ridiculous demands and exposing your body for unnecessary radiation. I can tell you are a good strong patient and that makes all the difference in the world.

    You might want to try this link http://www.acamnet.org/site/c.ltJWJ4MPIwE/b.2772303/k.87A2/PhysicianLink_Find_a_Doctor/apps/kb/cs/contactsearch.asp
    They are the American College for the Advancement of Medicine and they will have docs who specialize in complementary and alternative therapies. You put in your zip and a listing comes up. If they are not oncologists per se, they can probably refer you to an oncologist they know who is knowledgeable about / open to alternative therapies. Best of luck to you.

  7. June 29, 2009 7:04 am

    Hi Sheila! Thanks for the visit! And the website..I’m off to check it out now…This whole process is tiring…and my main priority is staying well. The language of the medical profession is one of fear, and I need to protect myself from that. Sooo…I rest and get my balance, and make juice and enjoy the fun of life…and then make another run at finding the right doctor. I’ll keep you posted..

  8. Rebecca Ayre permalink
    July 1, 2009 9:50 pm

    Hi Liz,

    I just read your last two posts…and am giving thanks to the powerful, protective, and healing powers that be to take care of you and nurture you through this time. I trust that you will find your perfect path in a perfect way…

    Much love,

    Rebecca, Kris, and Dr. Ayre

  9. July 2, 2009 6:48 am

    Rebecca! Thanks for the visit and support! I felt comfort just reading these words…moving is not easy..
    I’m talking with a friend about coming for a visit out to ChicagoLand. No date set yet…Would love to stop in for a visit and hug…meantime, virtual hugs to you and Kris, and to your Dad!

    • Rebecca Ayre permalink
      July 2, 2009 1:46 pm

      And hugs back to you 🙂

      Drop on by anytime – we would love to see you.

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